Tuesday, September 15, 2009

Long time no post...

So sorry! Really have no excuse for not updating... Purely lazy. Unfortunately, I am posting on Justin's laptop so I won't be able to put pictures up. My computer's keyboard is not connecting for some reason and when I call MyApple to get help they tell me that my 30 days "out of the box" time has run out and I need to go search the website for help. Ummmm, well I can't search the website if my keyboard isn't working. Wish I had some family member that worked for Apple and could help with some troubleshooting. Hint hint.
Jackson is completely consumed by Legos these days. He was so lucky to have gotten my brothers ancient Legos, literally over twenty years old, and we have ofcourse added to his collection and what do you know you can't tell the difference between the two. Amazing these things are. Hours are lost just putting together make believe creations. Guns, ships, cars, planes, houses, space stations, Riley attackers, you name it we make it. So into it that he wouldn't let Justin clip his thumb nail because it was needed to take his Legos apart! Which is true. If you don't have one long nail those things are stuck like glue. He's doing fabulous.
Lily Kate is sitting up. She has shown us that she can sit up for several minutes. Her record is 20! She is such a happy little girl. We are continuing to play with her medications. Weaning her off two and probably starting a new one soon. She continues to have one or two seizures a day, just depending on whether she naps or not. She is really loving being in the swing these days. We have on on our playground in the backyard and she loves going high. Literally lets out cackle laughs. I have a few pictures of this that I will upload soon!

Tuesday, July 28, 2009

Jackson, Jackson everywhere!

Jackson has been on several adventures this summer!  Lately, he got to go to a Cardinals baseball game (it just so happened they were playing in the Astros ballpark).  He was decked out in his Card gear and ready to cheer on Pujols! He also went to the Butterfly center at the Houston Museum of Natural Science which was awesome!  There were butterflies everywhere and it was so hard for him to not touch!  But one of the men that worked in the center was very nice and let Jackson hold some of the butterflies that were swarming around him. He left a very happy boy after spending two hours surrounded by butterflies and insects of all kinds!










White Boys Can Dance!

There is really no introduction needed for this video...

Tuesday, July 14, 2009

TATERS LAUGHING!!

I got a new iPhone and took this video of Lily Kate with her new ponytails and cracking up at the zerbert sound.  Is that the right word?  Anyway... how can you not laugh with this girl!!

Woohoo!


As many of you know Lily Kate has had almost 15 months of bad hair days... And I have been hesitant of what I could really do with 'it'.  Well today I broke out the rubber bands and came up with your good old baby ponytails. And they look pretty darn cute!  In the pictures you can also see the new chair she got. It is perfect because now she has a place that is comfortable and safe for her. Enjoy!






Monday, July 6, 2009

Seizures, seizures go away

Unfortunately, Lily Kate's seizures have returned.  Almost 6 months to the day.  I have kind of always had this feeling in the back of my mind that they weren't going to be gone forever.  I have found that other children with this diagnosis have what they call honeymoon periods. They go 6 months sometimes even a year seizure free and then out of nowhere they pop up.  Her neurologist has decided to try out a newly approved drug called Banzel.  We'll let you know how it goes!

Wednesday, July 1, 2009

All I want for Christmas...



Well as some of you know Jackson's two front teeth were capped back in December because of a cavity.  In March he hit them while doing some graceful pose on the toilet, yes the toilet.  So now an infection popped up between the two front teeth and he had to have them pulled today!  He will be asking for his two front teeth for many Christmas's to come! Here are a few before and after shots!