Crack me up!!

I know people always talk about how funny their kids are... but Jackson just cracks me up!  He has found a new phrase and uses it all the time.  We have no idea where he heard it or got it from!  He used it the other day standing on the side of the pool and said "Mommy look, Mommy look!"  Finally I turned to pay attention and he screams "I LOVE YOU IN MY LIFE!"  and jumps in.  How can you not laugh hysterically at that.  He says it all the time.  To Lily Kate, Justin, Lucy our dog, the neighbors... everyone.  And it is not just said but yelled!  I ask him "where did you hear this" or "why do you say that"  and his nonchalant answer is always "for I just do."  I mean really Mom no big deal I just love you in my life.  He is so full of life, his teachers would probably tell you he is full of something else but I choose to approach it this way.  He approaches everything with such intensity.  He either LOVES YOU IN HIS LIFE or he is SOOOOO ANGY AT YOU.  Seriously, this is what he says to people... me, the lifeguard, his bff Jakey,  "I am so angry at you!"  I guess it is better than physical force. Oh lord the days we have ahead of us with this one!

Technology

So we bit the bullet and bought a desktop computer... I love it!  We went Mac, not that I am so tech savvy that I have to do cool stuff with pictures or record my own music I just like it better and their commercials are great.  Jackson seriously loves it too.  He is hooked on playing the Noggin games and has also figured out how to print stuff.  How do they catch on so quick?  I was feeling so technologically cool that I also did up a facebook page.  Not sure if that is correct grammar but either way I did.  I only have 12 friends... No one knocking down my door! I think half the people on there just do it to legally spy on others!  Me too!  

We also bought Lily Kate a new bath chair which is working out well especially when Jackson gets in with her.  She does love her brother but only when she wants to!

An Answer is Found

After two years of countless tests, scans, surgeries and prayers we were finally given the news we have long awaited. Lily Kate's CDKL5 test came back positive. She has a mutation on this gene. Deep breath. In so many ways this is such closure to finally know what exactly is going on with our little girl. At the same time it is something you would never hope for. Justin says the diagnosis doesn't matter because it changes nothing about how we love her or how we are giving her everything we can to be better. He is right. It does however give me a group to relate to and a group of other mothers that understand exactly what I have been through and will continue to struggle with. She truly is a joy. This genetic condition affects a very small number and only girls. Around 50 cases have been diagnosed in the world. They believe there may be a total of 200 but the test is so new that many have not heard of it. Please feel free to check out the website www.cdkl5.com to find out more. I began feeling like a pro when dealing with doctors, hospitals and such but now I have been thrown back to the minors with this. One day at a time we will learn. Thank you all for caring. Much love!

And we're back

We loaded the car and headed back west yesterday morning. Me, Jackson, Lily Kate, Lucy and the several hundreds of dollars worth of toys that neither of my children needed drove 11 hours back to Houston! It really wasn't as bad as I thought it would be. Although I received many pity looks when I was carrying Lily Kate and trying to keep Jackson confined, especially when I loaded both of them in and then got Lucy out of the back. I could just see the words running through some of those old ladies minds, "Oh bless her heart...". Ha! But I did it and not only that I did it well! I made the same time, maybe even a little faster, than Justin and I driving together! Most importantly we had a great time with my parents. Even when Jackson pulled stunts like calling Boss an idiot. (I don 't know what he was thinking) It did make me feel better when the next day in the car he said "Mommy, what does idiot mean?" Followed by me explaining it and his response was "Oh I didn't know that." Believe me he quickly learned after saying it that it was the wrong thing to do!
We are now back in the swing of things here. LK is back in school and Jackson will be going on Tues and Thurs. I woke up this morning and felt no rush to get somewhere and leisurely made lunches and got dressed. Oh I love not working!!