Just realized we really haven't sent out any mass emails about Lily Tater since her last surgery and wanted to give a quick update on how our girl is...
She is enrolled in a wonderful school, The Arbor, and she loves it. She receives constant therapy there from the occupational, speech and physical therapist along with her two teachers which are trained by the therapists. We have seen so much growth. She is drinking from a straw and can sit up on her own for a few minutes. She is verbalizing a lot more and we love it! Always laughing unless she is hungry or wants to be picked up and cuddled! Still no seizures since January 2!! She has had a few more genetic tests run and one has already come back and was negative, this one was for Rett syndrome. There is sitll one we are waiting on and it is for a genetic syndrome called CDKL5. It will probably be about 3-4 weeks before we hear anything. As always she lightens our days!
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